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This foundation was originally known as CHARM (Children's Association for Research on Mucolipidosis), and was founded in 1982 by Ron & Lynn Goldblatt, their parents, Roz and Joe Zakutinsky, other familily members, and close friends.
Research has come a long way since the organization's beginning. Today the foundation funds three major medical institutions comprised of the best genetic scientists recognized worldwide. In addition, it tries to reach out to other families affected with this debilitating disorder.
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